Newsletter Vol. 3 No. 8 - Lupus
While sun protection is important for everyone, many individuals who have medical conditions are threatened with worsening symptoms when exposed to the sun. This newsletter is about lupus and the Lupus Foundation.
It is estimated that up to 1.5 million people in the United States have been diagnosed with lupus, a complex autoimmune disorder, and that more than 16,000 Americans develop the disease each year. While most of these people only have a mild form of lupus, others may develop serious and even life threatening problems.
The Lupus Foundation estimates that more than 90% of people with lupus are women, and that symptoms and diagnoses occur most often when women are in their child bearing years between ages 15 to 45.
There are three common types of lupus: discoid (cutaneous) lupus, which is always limited to the skin; systemic lupus, which can affect every organ in the body; and drug-induced lupus which occurs after the use of certain drugs. Lupus also occurs frequently in individual diagnosed with mixed connective tissue disease. In all type of lupus, sensitivity to ultraviolet radiation is common, and sun protection is vitally important.
The Lupus Foundation provides a comprehensive description of the disease, what treatments are available and suggestions for how to best live with the disease. The web-site for the Lupus Foundation gives links to major health and research organizations. The Foundation also lists its nationwide network of nearly 300 chapters, branches and support groups that help individuals with lupus, their families, caregivers and health professionals.
At Coolibar, we create clothing that offers the best protection possible for individuals with lupus. We hope that by raising awareness of this disease and other diseases directly affected by the sun's ultraviolet radiation, we can create more support for affected individuals and organizations like the Lupus Foundation.