When Juvenile Dermatomyositis (JDM) entered our lives, it hit us hard. JDM is a rare autoimmune disease in children that causes inflammation and swelling of the muscles and blood vessels under the skin. JDM makes exposure to UV rays more dangerous as the rays intensify rashes caused by the disease. About three in a million children in the US are diagnosed every year. My son Leo...

My name is Amy Nichole. I’m a fine art portrait photographer specializing in children’s & teen photography. For my career, I’m always outdoors and occasionally in the studio. Since birth, I’ve always had very pale skin with freckles and a reddish tone to my hair. At the age of 8, I received an awful sunburn that actually resulted in a birthmark looking design on my right...